2/22/11 - Yesterday was a momentous day in the Probeyahn household... Nathaniel got to come home from the hospital! We knew there was a possibility of him coming home this week, but didn't want to get our hopes up in case he took a down-turn. The boys all had their 2-month immunizations over the weekend and they were all feeling so poorly, throwing up and just plain uncomfortable. In order to come home Nate had to avoid any signs of de-sat or bradycardia after the shots and he did great! He also had to pass a car seat study where they placed him in his car seat for 45 min and he had to show no signs of desat or bradys. He passed with flying colors! Lastly, the boys had another eye exam yesterday morning and that always gets them riled up. I truly didn't think Nate would end up coming home the same day as his eye exam, especially piggy-backing it on his vaccinations. But we got the call late in the afternoon that the Doc had given orders for discharge! We went in to pick him up and watch the required CPR video and truly spent most of our time comforting Mitch and Eli who were still feeling sickly from all the aforementioned procedures. But around 8pm we were home with Nate. I can still hardly believe he is here!
We are very lucky that he has done so well with his breathing and didn't require any type of home-monitor. However, since he's been home he has been quite congested. It was a long sleepless night (the first of many I know!) and he didn't seem very interested in eating. Mommy and Daddy fussed over him all night, trying many different things to help him get comfortable. I'm sure we will fall into a routine eventually but right now we're just enjoying every min and sleeping whenever we get the chance. As I type this Nate is lying on my chest sound asleep... finally! He is so darn sweet :)
2/23/11 - Well I started writing this post yesterday and of course, murphy's law, as soon as I wrote that Nate was sound asleep he started fussing! :) Today was a much easier day. Last night went more smoothly too. Nate had his first pediatrician appointment this morning and the doctor said he looks great! I spent an hour on the phone making follow-up appointments with specialists. Nate has to see an opthamologist, a cardiologist, an urologist, and a neurologist all within the next month. Plus we got in contact with Early Steps to initiate their services as well (more on this to come on a future post).
Matt went to see the other two boys last night and they were much improved. Mitchell was slated to begin weaning down to wall oxygen today, but he got delayed due to a brady episode earlier in the day. So hopefully tomorrow. Eli is still on a 2liter flow and a holding steady in the 30% oxygen range so he's got a way to go yet before he gets to wall oxygen. They both have to be on wall oxygen and saturating well for several days before they can come home. And they both will come home on oxygen too.
Ok enough updates for now. Here are some photos from Nate's homecoming!
We are very lucky that he has done so well with his breathing and didn't require any type of home-monitor. However, since he's been home he has been quite congested. It was a long sleepless night (the first of many I know!) and he didn't seem very interested in eating. Mommy and Daddy fussed over him all night, trying many different things to help him get comfortable. I'm sure we will fall into a routine eventually but right now we're just enjoying every min and sleeping whenever we get the chance. As I type this Nate is lying on my chest sound asleep... finally! He is so darn sweet :)
2/23/11 - Well I started writing this post yesterday and of course, murphy's law, as soon as I wrote that Nate was sound asleep he started fussing! :) Today was a much easier day. Last night went more smoothly too. Nate had his first pediatrician appointment this morning and the doctor said he looks great! I spent an hour on the phone making follow-up appointments with specialists. Nate has to see an opthamologist, a cardiologist, an urologist, and a neurologist all within the next month. Plus we got in contact with Early Steps to initiate their services as well (more on this to come on a future post).
Matt went to see the other two boys last night and they were much improved. Mitchell was slated to begin weaning down to wall oxygen today, but he got delayed due to a brady episode earlier in the day. So hopefully tomorrow. Eli is still on a 2liter flow and a holding steady in the 30% oxygen range so he's got a way to go yet before he gets to wall oxygen. They both have to be on wall oxygen and saturating well for several days before they can come home. And they both will come home on oxygen too.
Ok enough updates for now. Here are some photos from Nate's homecoming!















































